We are Kristen and Robert Strong. The Palmer Nicklaus Foundation honors our son Palmer, born 4/1/17 at 2:03pm in Austin, TX. Palmer was born with Heterotaxy Syndrome and several Congenital Heart Defects (CHD) to include Dextrocardia, AVSD, Pulmonary Atresia, TAPVR, and MAPCAs, as well as some lesser defects. We battled alongside our son for 47-days while he fought for life. Our fight was a terrifying rollercoaster of emotions culminating on May 17th, 2017, the day we made the decision to let our son pass in our arms.
We were forced to make many tough decisions during Palmer's 47-days on this Earth, none more difficult or transformative as this one. As Palmer left this Earth, he opened his right eye one last time. The Dr.'s said he would not respond to our words, but Palmer proved them wrong, willing his spirit to us as he left this Earth.
The Palmer Nicklaus Foundation was formed to honor Palmer’s fight, fight for families that fight for their babies, support families emotionally, fund research, and feed families in the hospital. We made a number of promises to our son, the most important of which we could not keep; but, we intend to build Palmer's foundation as a living, growing testament to our never ending, and unconditional love for him. We will NEVER quit on Palmer. With your help we will honor our promises to Palmer, and in doing so, we will help many a person and family navigate through the battlefield that is Heterotaxy Syndrome and CHD. Stay HeartStrong!
We support children and families affected by Heterotaxy Syndrome and CHD by providing funding and support for family advocacy programs, Heterotaxy and CHD research, as well as meals to families in the hospital fighting alongside their children.
Through donations, our partnership with Pretty Thai Brand, Palmer's Song sales, and the generosity of people like you.
We made a promise to Palmer that we would live, not just for ourselves, but for what should have been and what could still be. Palmer is gone, but the fight remains.